Rather than, “Oopsy daisy!” I’ve changed it a bit to make it much more apropos.
I put my hot tea kettle in the fridge and my cream on the stove? POTSy daisy!
I walked to the wrong building for class and sat a moment wondering what was going on? POTSy daisy!
Brought the wrong books to class and you’re reading for the day…? POTSy daisy!
Thank you fibro and Dyssie for clouding my mind and screwing up my cognitive function. I will slur my words, speak like I’m Dyslexic, not be able to focus, concentrate, locate very basic words for speaking, much less spelling and an array of issues.
I’m going to have to start my beta blockers again… I can not do this any longer. Today I had to be at school early to discuss creating a second major, so I had to walk the entire campus twice from parking. It should be quite simple, but it isn’t. The pain was one thing, but dear god my stomach and my heart/lungs/head… I have to be able to walk without collapsing from my heart, lurching my lunch, or suffering from not being able to breathe. I need to be able to sit in class and focus and not fight a near narcolpetic exhaustion. I need to be able to sit in class without syncope. All in all, I’d love to live without all of it, but, C’est la vie.
Today has done me in… Tightness in the left side of my chest/back, tight and weak left arm and the pain of my heart…the lungs threatening to collapse, shin splints, bum ankle, feeling like I’m carrying a one hundred point weight pack on my back that is trying to squeeze the life out of my body… No fun. The nausea as well? How many Dyssie/Spoony/Potsies have the connection between nausea and heart…? The pain and tightness aren’t subsiding and as soon as I got home and sat down, the horrible muscles spasms set in, in my back/neck.
This week just…hasn’t been my week at all. That’s alright though, because in the midst of the mind boggling and physiological wracking, psychological soup pot, there are good things!
A.) What are you getting for Valentines day if you do in fact celebrate it…? I don’t celebrate buttt I AM GETTING A HOUSE. The hubbs and I stumbled on the perfect first home and it is incredibly marked down! It’s a gem! I am trying not to be overly excited about it, because I always prepare for the worst, but still, I am a wee bit thrilled to have a one level for the spoonie lady, that is laid out and decked out perfectly!
B.) I am going to start constructing my own major in health and epidemiology.
I hope that that works out as well…
I am completely worn out and sick and I really need to get some rest… Toodles, bloggers.
Hi! Do you also suffer from Narcolepsy? I saw you mention it. I have POTS, NCS, and Narcolepsy and haven’t figured out how to deal with the narcolepsy…
Hello, Meaghan!
I have yet to do any form of a sleep study but it’s really just severe chronic fatigue. These days I’ve turned the pride down a bit and try to nap. Sometimes, however, I’m dangerously sleepy.
I totally agree there is a connection between heart and nausea or so it is true for me! Congrats on the house!
Thanks for responding, Heather! I always seem to find them going hand in hand, but sometimes the nausea likes to run rampant on its own. Thank you! We are pretty excited about it.
Haha…”POTSy daisy”. I love it! I was searching for my keys the other day – I looked everywhere. Turns out they were in the fridge. I don’t remember how or why they got there, but definitely a POTSy daisy moment.
sorry to hear you aren’t feeling well!
Oh it’s alright! Everything always comes in waves.
I often wonder where on earth my mind goes when it isn’t here! hahaha